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Living with diabetes and Celiac Disease: the adolescent experience

Grant number: 11/18901-9
Support Opportunities:Scholarships in Brazil - Scientific Initiation
Effective date (Start): November 01, 2011
Effective date (End): October 31, 2012
Field of knowledge:Health Sciences - Nursing - Pediatric Nursing
Principal Investigator:Elaine Buchhorn Cintra Damião
Grantee:Bianca de Cassia Alvarez Brancaglioni
Host Institution: Escola de Enfermagem (EE). Universidade de São Paulo (USP). São Paulo , SP, Brazil


Type 1 Diabetes Mellitus is more commonly diagnosed in children, adolescents, and young adults, corresponding to about 5 to 10% of all cases of diabetes. The treatment of type 1 diabetes consists of insulin replacement, self-monitoring of blood glucose, adoption of a healthy diet, and planned physical activity. It is also known that type 1 diabetes is associated with the occurrence of other autoimmune diseases, such as Celiac Disease (CD), which affects 0.5-1.0% of the general population and 0-10.4% of the people with type 1 diabetes. Celiac Disease is an immune-mediated enteropathy caused by a permanent sensibility to gluten in genetically susceptible individuals. The first signs of CD can be a deficit in development and diarrhea. When associated with type 1 diabetes, however, the diagnosis of CD becomes more difficult because classic signs of this disease, such as diarrhea, do not occur or are attributed to other factors. The treatment consists of the adoption of a gluten-free diet. The experience can be even more stressful depending on the individual's life phase. As adolescence is a phase in which there is intensely physical, psychological, cognitive, and social development; the transition between childhood to adult life occurs, we believe the experience of the adolescent who lives with two chronic diseases, type 1 diabetes and CD, is potentially more stressful. Thus, our purpose is to conduct an exploratory and qualitative study about the experience of adolescents who live with type 1 diabetes and CD. The objectives of the study are a) To understand how adolescents with type 1 diabetes and CD live their illness experience and b) To identify how adolescents deal with two chronic illnesses, type 1 diabetes and CD, in their daily lives. We will use as a methodological reference the Content Analysis. The participants of the study will be adolescents from 12 to 18 years old, with the diagnosis of type 1 diabetes for at least 1 year and CD, regardless of the time, but under treatment. Data will be collected in pediatric endocrinology clinics and in a type 1 diabetes Association, after the approval of the respective Ethics Committees, through semi-structured audio-recorded interviews. The data analysis will follow the principles of Content Analysis.(AU)

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Scientific publications
(References retrieved automatically from Web of Science and SciELO through information on FAPESP grants and their corresponding numbers as mentioned in the publications by the authors)
BIANCA DE CÁSSIA ALVAREZ BRANCAGLIONI; GRASIELE CAROLINE RODRIGUES; ELAINE BUCHHORN CINTRA DAMIÃO; MÁRCIA SILVA QUEIROZ; MÁRCIA NERY. Crianças e adolescentes que convivem com diabetes e doença celíaca. Rev. Gaúcha Enferm., v. 37, n. 1, . (11/18853-4, 11/18901-9)

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