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Caregiver quality of life

Grant number: 16/03324-0
Support type:Scholarships in Brazil - Scientific Initiation
Effective date (Start): September 01, 2016
Effective date (End): August 31, 2017
Field of knowledge:Health Sciences - Nursing - Medical-Surgical Nursing
Principal researcher:Maria Virginia Martins Faria Faddul Alves
Grantee:Julia Valério Santa Rosa
Home Institution: Faculdade de Medicina (FMB). Universidade Estadual Paulista (UNESP). Campus de Botucatu. Botucatu , SP, Brazil


Children with myelomeningocele have a chronic condition and the course of their lives can be submitted to different surgical procedures. In this way the family unit is weakened in need of restructuring to meet basic human needs and may vary according to the neuromotor impairment . The objective of the study is to verify the quality of life of the caregiver . This is a cross-sectional study, which will be held in the children's clinic of a teaching hospital. Will be included informal caregivers of children in postoperative spinal disrafism correction for myelomeningocele , 6 months to 18 years, who will answer the questionnaire Priorities Caregiver and Health Index of Children with Disabilities. The study will subsidize guidelines protocols with a view to the quality of life of the caregiver and children.

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