Translation and transcultural adaptation of question of patient dignity and time is me for use in the Brazilian population

• Grant number: 19/14091-4
• Support Opportunities: Scholarships in Brazil - Scientific Initiation
• Effective date (Start): September 01, 2019
• Effective date (End): August 31, 2020
• Field of knowledge: Health Sciences - Medicine - Medical Clinics
• Principal Investigator: Bianca Sakamoto Ribeiro Paiva
• Grantee: Bruna Minto Lourenço
• Host Institution: Hospital do Câncer de Barretos. Fundação Pio XII (FP). Barretos , SP, Brazil

Abstract

Progress has been observed in the research and routine evaluations of the quality of life of patients with cancer, but little has been addressed on the issue of patient dignity in Brazil. Cancer treatment requires not only technical standards but also the rescue of human dignity, which can contribute to the identification of which aspects are important for the same during his treatment. Dignity Therapy (DT) is a brief psychotherapy based on an empirical model of dignity that begins with reflection on why some patients with advanced disease wish to die, while others find serenity and the desire to enjoy their last days. This therapy offers patients, not only with advanced disease, the opportunity to reflect on issues that are important to them or other things they would like to remember or pass on to others. The Patient Dignity Question (PDQ) and the This is me (TIME) are clinical tools developed through PDQ in order to enhance dignity and promote health. It values caring attitudes, through a holistic view, looking at who they are, and not defining them solely based on their medical condition. Objective: To validate the content of the Question of Dignity and the Questionnaire This is me. Materials and methods: Descriptive, methodological and cross-sectional study. The place of study will be the Hospital de Cancer de Barretos. The study will consist of the stages of translation and cultural adaptation (committee of experts), pre-test (with 30 cancer patients). Expected results: It is hoped to identify an adequate version of the PDQ and TIME so that they can be useful in evaluating the dignity of the cancer patient, thus providing an important tool for professionals to know better the patients who are under their care.