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In search of normality : being with adolescents with chronic kidney disease

Author(s):
Marcela Astolphi de Souza
Total Authors: 1
Document type: Master's Dissertation
Institution: Universidade Estadual de Campinas. Faculdade de Enfermagem
Defense date:
Examining board members:
Ana Regina Borges Silva; Regina Issuzu Hirooka de Borba
Advisor: Luciana de Lione Melo
Abstract

Adolescence should be considered as an existential moment beyond the chronological age of puberty and physical changes, because there is no single adolescence without temporality. Promotion, prevention and care of adolescent health in Brazil are a challenge, because although there are public policies, they do not constitute a guarantee of rights. The adolescent with a chronic illness is a reality considering the current morbidity and mortality profile that reflects the increase in chronic diseases and the reduction of infectious and parasitic diseases. Like most chronic childhood disease, chronic kidney disease can be progressive and fatal, requiring continuous specialist care and subjecting the adolescent hospitalizations during the process of growth and development. Chronic renal failure not only initiate imbalances in the body, but it interferes with the quality of life of adolescents and may contribute to the onset of emotional disorders related to negative impacts from difficulties involving peer relations, social participation and maintenance activities daily, leading them to feelings of inferiority and low self-esteem. The aim of this study was to understand the being-with adolescents with chronic renal failure from your speech being in the world. This is a phenomenological study based on the Existential Phenomenology of Martin Heidegger, accomplished with six teenagers who were experiencing chronic renal failure and are treated in a teaching hospital, public, located in the upstate State of São Paulo. Adolescents were interviewed from the guiding question "how to be a teenager with chronic renal failure?" Understanding discourses occurred through the descriptions of experiences and in accordance with the mode adopted qualitative research - analysis of the structure of the phenomenon located. From listening to speeches of adolescents with chronic renal failure was possible to understand some aspects of how it is be-teen-with-chronic-renal-failure, emerging the following existenciários aspects of being-there: Feeling different, Experiencing failure by chronic kidney of renal replacement therapy and Seeking normalcy. From these themes, we sought to achieve the heideggerian sense of the phenomenon in question. For teenagers, the actuality is having chronic renal failure and this determines their occupations within a world that happens and he is released. Dealing with the treatment and care that the disease causes in their lives and show that these occupations are part of their existence. At present themselves involved in its actuality, they show the forms of your being-in-world-with- chronic renal insufficiency - a unique way. Young people associated the matter of living with the chronic condition to its own ontic renal failure and from references already entered in your world life presented attempts to normalize the disease situation, concealing what is shown for themselves, of their own condition. Given this, it was possible to learn ways of dealing with existential issues are different and consider the historicity and temporality for take-that-be. Thus, before the take-that-be-teen-with-chronic renal failure, nursing needs to understand the modes-of-being in the world of teenagers and (re)consider what can be done and how to improve care to the teenager who, as the subject of his story, is permeated by weaknesses and singularities, where the teenager always has the possibility of being and also reach-non-being. (AU)

FAPESP's process: 12/21148-3 - In search of normality: being with adolescents with chronic renal failure
Grantee:Marcela Astolphi de Souza
Support type: Scholarships in Brazil - Master