The impact of the pandemic on physical and functional disabilities in children and adolescents with spina bifida

Autor(es)

Estevam, Ester da Silva ; Franco, Camila Scarpino Barboza ; Martins, Emanuela Juvenal ; Petian-Alonso, Danila Cristina ; Cruz, Karoliny Lisandra Teixeira ; Mattiello-Sverzut, Ana Claudia

• Tipo de documento: Artigo Científico
• Fonte: SPINAL CORD SERIES AND CASES; v. 10, n. 1, p. 5-pg., 2024-08-19.

Resumo

Study designRetrospective and cross-sectional study.ObjectivesThe study aimed to carry out telemonitoring to identify the impact of the pandemic on physical and functional disabilities in children and adolescents with SB, as reported by their caregivers, and to investigate adherence to a teleservice.SettingHospital das Cl & iacute;nicas da Faculdade de Medicina de Ribeir & atilde;o Preto da Universidade de S & atilde;o Paulo (HCFMRP-USP).MethodsRetrospective and cross-sectional study. Fifty-three patients with SB (mean age 12.0 (4.0) years; 23 males) participated in the telemonitoring. A questionnaire - 'Health management, health conditions, rehabilitation, interest in teleservice, and the well-being of the main caregiver' - investigated the clinical impact of the coronavirus pandemic. Only three caregivers participated in the teleservice (video call).ResultsAccording to telemonitoring, 62% of the patients discontinued physiotherapy sessions, and 69% reported needing adjustments in locomotion devices. The main complaints were muscle weakness and pain.ConclusionWe monitored general health and identified demands related to physical rehabilitation using telemonitoring in 42.4% of children and adolescents with SB monitored at the HCFMRP-USP. Telemonitoring and teleservice may be methods used for monitoring health conditions in patients with SB. (AU)

• Processo FAPESP: 17/17596-4 - Capacidade aeróbia, força e potência muscular de crianças e adolescentes com doenças crônicas: caracterização e tratamento
• Beneficiário: Ana Cláudia Mattiello-Sverzut
• Modalidade de apoio: Auxílio à Pesquisa - Temático