Autor(es)

Brugnaro, Beatriz Helena ; Fernandes, Gesica ; De Campos, Ana Carolina ; Pavao, Silvia Leticia ; Pfeifer, Luzia Iara ; de Camargo, Olaf Kraus ; Hlyva, Oksana ; Rocha, Nelci Adriana Cicuto Ferreira

• Tipo de documento: Artigo Científico
• Fonte: DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY; v. 66, n. 8, p. 14-pg., 2024-03-25.

Resumo

Aim: To describe current home participation (frequency, involvement) and caregiver's desire for change in home participation of children and adolescents with Down syndrome, as well as home environmental factors, and to explore the associations of personal and environmental factors with current participation and caregiver's desire for change. Method: Eighty-two caregivers (mean age = 45 years 10 months) of children and adolescents with Down syndrome (mean age = 10 years 7 months) were surveyed about the child's home participation and environmental factors using the Participation and Environment Measure-Children and Youth. Furthermore, children's personal and environmental factors were collected. Results are reported using descriptive analysis and correlations (Spearman's rank correlation coefficients and Mann-Whitney U test) to describe the relationship between current participation and caregiver's desire for change, with personal and environmental factors as ordinal and nominal variables respectively (p < 0.05). Results: Children's participation was highest with regard to personal care management and lowest with regard to school-related activities. Most caregivers desired change in homework and household chores. Greater frequency was associated with male sex, caregiver less rigorous social distancing due to the COVID-19 pandemic, and children receiving therapies. Greater involvement was associated with younger age in children and higher environmental support. Older age in children was associated with caregiver's greater desire for change. Interpretation: Personal and environmental factors correlated with participation in specific ways. Creative strategies to promote participation that consider caregiver's wishes should be undertaken. (AU)

• Processo FAPESP: 19/13570-6 - Caracterização da atividade e participação de crianças e adolescentes com Síndrome de Down: influência de fatores biopsicossociais
• Beneficiário: Nelci Adriana Cicuto Ferreira Rocha
• Modalidade de apoio: Auxílio à Pesquisa - Regular
• Processo FAPESP: 19/13716-0 - Determinantes da participação nos ambientes da casa, da escola e da comunidade de crianças e adolescentes com Síndrome de Down
• Beneficiário: Beatriz Helena Brugnaro
• Modalidade de apoio: Bolsas no Brasil - Doutorado Direto