The importance of transition from pediatric to adult rheumatology care in juvenile idiopathic arthritis

Autor(es)

de Oliveira, Rodrigo Joel ; Kishimoto, Simone Thiemi ; de Souza, Debora Pessoa ; Fernandes, Paula Teixeira ; Marini, Roberto ; Appenzeller, Simone

• Tipo de documento: Artigo Científico
• Fonte: EXPERT REVIEW OF CLINICAL IMMUNOLOGY; v. 17, n. 2, p. 7-pg., 2021-01-23.

Resumo

Introduction: Juvenile idiopathic arthritis (JIA) is the most common rheumatic inflammatory condition in childhood. The long-term morbidity, mortality, and quality of life have improved with the earlier use of disease-modifying drugs (DMARDs) and the availability of biology disease-modifying drugs (bDMARDs). Despite the improvement of treatment, around 50% of the patients reach adulthood with articular and/or extra articular disease activity. A careful planned transition from pediatric to adult care is necessary to reduce the loss of follow-up that is associated with stopping medications, flares, and disability due to untreated arthritis or uveitis. Areas covered: This narrative review provides an overview of the importance of transition in JIA Articles were selected from Pubmed searches. Expert opinion: JIA patients, family, and healthcare workers have to be trained to provide an effective transition plan, based on local and national policies. Important aspects such as expectations, maturation, disease characteristics, disease activity, adherence, disability, and psychological aspects among others have to be considered and addressed during the transition phase to improve self-esteem, self-assurance, and quality of life. (AU)

• Processo FAPESP: 19/06632-5 - Avaliação longitudinal de alterações microestruturais cerebrais através da espectroscopia de prótons por ressonância magnética, citocinas pró-inflamatórias e marcadores neuronais em pacientes com Lúpus Eritematoso Sistêmico
• Beneficiário: Simone Appenzeller
• Modalidade de apoio: Auxílio à Pesquisa - Regular