Understanding the experience of families about the relationships with nurses during the dying process of hospitalized child

• Grant number: 14/19466-2
• Support Opportunities: Scholarships abroad - Research Internship - Doctorate
• Start date: February 17, 2015
• End date: July 16, 2015
• Field of knowledge: Health Sciences - Nursing - Pediatric Nursing
• Principal Investigator: Regina Szylit
• Grantee: Maiara Rodrigues dos Santos
• Supervisor: Debra J. Lynn-McHale Wiegand
• Host Institution: Escola de Enfermagem (EE). Universidade de São Paulo (USP). São Paulo , SP, Brazil
• Institution abroad: University of Maryland, Baltimore (UMB), United States
• Associated to the scholarship: 12/16810-9 - Understanding the experience of families about the relationships with nurses during the dying process of hospitalized child, BP.DR

Abstract

This qualitative research aims to understand the experience of parents in their relationships with nurses during the child's dying process in the hospital and to indentify the meanings parents attribute to the relationships established with nurses during their grieving process by the death of their child. The research is guided by Gadamer's Philosophical hermeneutics. Participants are bereaved parents who faced the death of a child and who experienced the hospitalization in the child's end of life. The recruitment is done through interview with key informants - professionals who work in pediatric unit - and inquiry of the hospital's obituary. After identifying a subject, he can also refer another participant, characterizing the snowball sampling technique used in this study. The interviews are conducted at least 6 months after the child's death. The interpretation of the data is based on the process of transcription, reading the narratives, review of field notes and interviews, followed by depth reflection for the generation of interpretations. Investigating the relationship between nurses and families in a child end of life can help health professionals to improve programs and services in palliative care and also to prevent complicated grief. (AU)