Digital Strategies for Disseminating Information on Rare Diseases: Expanding Reach and Impact

• Grant number: 24/19281-4
• Support Opportunities: Scholarships in Brazil - Master
• Start date: December 01, 2024
• End date: November 30, 2026
• Field of knowledge: Health Sciences - Collective Health - Public Health
• Principal Investigator: Domingos Alves
• Grantee: Michele de Souza Seixas
• Host Institution: Faculdade de Medicina de Ribeirão Preto (FMRP). Universidade de São Paulo (USP). Ribeirão Preto , SP, Brazil
• Associated research grant: 23/10203-8 - Promoting Comprehensive Care for People with Rare Diseases: Strengthening the Care, Registration and Awareness Network at Hospital das Clínicas in Ribeirão Preto, AP.PP

Abstract

Given the current demands for validated and accessible health information, the master's project presented here aims to investigate and apply digital strategies to optimize the reach and impact of the dissemination of information on rare diseases. The analysis of metrics and performance indicators will be used to assess the effectiveness of the digital strategies adopted and improve them over time. The project is intrinsically linked to the continuous assessment of the impact of actions as an informational product, allowing a careful analysis of the results and contributions for their improvement and implementation in the context of the proposed public policies.