Therapeutic itineraries of children with microcephaly from Zika virus syndrome

• Grant number: 17/14206-0
• Support Opportunities: Scholarships in Brazil - Scientific Initiation
• Effective date (Start): October 01, 2017
• Effective date (End): September 30, 2018
• Field of knowledge: Health Sciences - Physiotherapy and Occupational Therapy
• Principal Investigator: Andrea Perosa Saigh Jurdi
• Grantee: Luísa Chibani Mauad
• Host Institution: Instituto de Saúde e Sociedade (ISS). Universidade Federal de São Paulo (UNIFESP). Campus Baixada Santista. Santos , SP, Brazil

Abstract

Official information on live births in Brazil report that in the period 2000-2014, the number of live births with microcephaly showed stability. However, from October 2015 there was an unexpected increase in cases, mainly in the northeast region of the country, due to the Zika Virus. Microcephaly is a congenital malformation in which the brain does not develop properly: the cephalic perimeter of the newborns is less than two standard deviations from the mean for age and sex, which can lead to brain changes and neurodevelopmental problems. Literature and the Brazilian media have been intensely discussing the virus and its manifestations, but it has not done with the same intensity a discussion about the follow-up of children and their families, the social and emotional impact and the financial burden of families and Nor the preparation of health teams to face the challenge of evaluating and instituting intervention methods over time. The objective of the study is to analyze the therapeutic itinerary of children with microcephaly resulting from infection by Zika virus born from October 2015 to October 2016, residents of the city of Santos / SP. This is a retrospective study of a qualitative approach that will use the therapeutic itinerary as a research strategy. The concept of therapeutic itinerary refers to a set of plans, strategies and projects focused on the treatment, allowing to establish a relationship between the sociocultural dimension and the individualized conduct of each individual. The study will use the sociodemographic questionnaire and family narratives for the data collection, being the analysis done through the triangulation of methods. The study is expected to provide the scientific and academic community with an overview of the support needs of families who have children with Zika Virus Syndrome. (AU)