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Social support and quality of life in families with children of the autism spectrum

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Author(s):
Milene Rossi Pereira Barbosa
Total Authors: 1
Document type: Master's Dissertation
Press: São Paulo.
Institution: Universidade de São Paulo (USP). Faculdade de Medicina (FM/SBD)
Defense date:
Examining board members:
Fernanda Dreux Miranda Fernandes; Debora Maria Befi Lopes; Ana Luiza Pereira Gomes Pinto Navas
Advisor: Fernanda Dreux Miranda Fernandes
Abstract

Introduction: The autism, classified as a Pervasive Developmental Disorder, is described by the American Psychiatric Association as a complex set of inabilities that include communication, behavior and social interaction of the affected individuals. Evidence suggest that the parents of autistic individuals are at considerably more risk of experiencing psychological impairments that are completely related to the assistance they receive. Another important issue to the association between the child’s behavior and mother discomfort is the economic stress faced by the families and the low amount of support provided. This support, when adequate, may allow better adaptation and acceptance. Purposes: to assess the formal and informal support provided to families with children and adolescents of the autism spectrum that are receiving institutional or clinical services and verify the reposted Quality of Life. Method: subjects were 150 caretakers of children and adolescents of the autism spectrum, with ages between 24 and 65 years. They answered a questionnaire about the social support available to them and to the World Health Organization Quality of Life – Brief questionnaire. Results: The group of participants that report the better social support is also the group with better Quality of Life. (AU)