Impact of caregiving in families of patients with disabilities and dependence in different contexts of vulnerability

• Grant number: 14/17821-0
• Support type: Scholarships in Brazil - Doctorate
• Effective date (Start): March 01, 2015
• Effective date (End): October 31, 2019
• Field of knowledge: Health Sciences - Nursing
• Cooperation agreement: Coordination of Improvement of Higher Education Personnel (CAPES)
• Principal Investigator: Maria Amélia de Campos Oliveira
• Grantee: Cintia Hitomi Yamashita
• Home Institution: Escola de Enfermagem (EE). Universidade de São Paulo (USP). São Paulo , SP, Brazil

Abstract

Introduction and justification: family is an important recourse of supporting in case of illness in one of its members. However, home care causes great impact on the family environment, that may change its dynamics and strengthen or weaken the relationships. Objective: to assess the impact of caregiving in patients with disabilities and dependence's families in different contexts of vulnerability. Casuistry and methods: this is a cross-sectional study, which will be conducted at Basic Health Units in the southern and central areas of the Sao Paulo city. The population is comprised of families cared by the Family Health Teams and the sample will be composed by those in which there is the presence of a member with disabilities and dependency and their respective caregivers. The following instruments will be applied: Self Reporting Questionnaire, Functional Independence Measure, Zarit Burden Interview, Social Network Index, Medical Outcomes Study, a questionnaire with closed questions to verify the positive aspects of caregiving experience and another one to characterize patients, caregivers and families's profile. All ethical aspects will be respected, according to Resolution 466/12. Form of results analysis: data will be analyzed using PASW version 20.0. It will be performed descriptive analysis of data and association analysis between dependent variables (related to the impact of care in different dimensions and social network and social support) and independent variables (related to the patient, caregiver and family's profile). (AU)