Where patients with Cancer prefer to die? Association of preferences expressed in life and the reality of patients in Brazil, Portugal and England

• Grant number: 18/08728-7
• Support Opportunities: Scholarships in Brazil - Doctorate
• Effective date (Start): October 01, 2018
• Effective date (End): September 30, 2022
• Field of knowledge: Health Sciences - Medicine - Medical Clinics
• Principal Investigator: Bianca Sakamoto Ribeiro Paiva
• Grantee: Talita Caroline de Oliveira Valentino
• Host Institution: Hospital do Câncer de Barretos. Fundação Pio XII (FP). Barretos , SP, Brazil

Abstract

The ideal would be for the patient to die in the desired place so that his will was respected. Identifying and understanding the factors that lead patients to choose the place of death preference and the actual place of occurrence is essential to plan quality care for these patients and their family caregivers, including in the post-death period . This research is a subject not yet explored in the Brazilian Literature, more specifically in the area of Oncology, as well as the comparison with the reality of other countries it is a determining factor to distinguish the magnitude of the socio-cultural and economic differences that involve these nations and can generate through the proposed results improvement in the scope of public health policies. Objective: To evaluate the preference of Cancer patients' place of death and to identify the agreement of this preference with their family caregivers and the actual place of occurrence. Materials and methods: A prospective longitudinal multicenter cohort study to be performed at the Barretos Cancer Hospital, the Portuguese Oncology Institute - IPO- Porto and the Cicely Saunders Institute for Palliative Care. Patients will be included in systemic palliative and/or palliative care for individual patients, life expectancy e 3 months and d 12 months, performance status d 2 and their family caregivers. The sample will be composed of 374 patients and 374 family caregivers. Participants will be investigated for preference of place of death in specific situations and in two distinct stages, being step 2 during the patient's treatment period and step 3 in a period of 3 to 12 months after the interview in step 2. Expected results: It is expected to identify the preference of the Brazilian Cancer patients' place of death and if this preference was met, to compare these results among the countries involved in the research and to propose more effective measures that can serve the patients, their family caregivers as well as to direct the planned care of institutions and health professionals. (AU)

Scientific publications

(References retrieved automatically from Web of Science and SciELO through information on FAPESP grants and their corresponding numbers as mentioned in the publications by the authors)

VALENTINO, TALITA CAROLINE DE OLIVEIRA; PAIVA, CARLOS EDUARDO; DE OLIVEIRA, MARCO ANTONIO; HUI, DAVID; BRUERA, EDUARDO; JULIAO, MIGUEL; PAIVA, BIANCA SAKAMOTO RIBEIRO. Preference and actual place-of-death in advanced cancer: prospective longitudinal study. BMJ SUPPORTIVE & PALLIATIVE CARE, v. N/A, p. 11-pg., 2023-07-04. (18/08728-7)

DE OLIVEIRA VALENTINO, TALITA CAROLINE; DE OLIVEIRA, MARCO ANTONIO; PAIVA, CARLOS EDUARDO; RIBEIRO PAIVA, BIANCA SAKAMOTO. Where do Brazilian cancer patients prefer to die? Agreement between patients and caregivers. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, v. 64, n. 2, p. 19-pg., 2022-08-01. (18/08728-7)

VALENTINO, TALITA CAROLINE DE OLIVEIRA; PAIVA, CARLOS EDUARDO; JULIAO, MIGUEL; PAIVA, BIANCA SAKAMOTO RIBEIRO. Place of death among Brazilian patients with cancer: preferences and associated factors. BMJ SUPPORTIVE & PALLIATIVE CARE, v. N/A, p. 2-pg., 2022-04-15. (18/08728-7)