Development of the Multidimensional Pain Interference Assessment Scale on Quality of Life (EMAIDOR-QUALIVIDA): a new conception from the perspective of the concept of total pain

Author(s)

Rodrigo Ramon Falconi Gomez

• Document type: Doctoral Thesis
• Press: Ribeirão Preto.
• Institution: Universidade de São Paulo (USP). Escola de Enfermagem de Ribeirão Preto (PCARP/BC)
• Defense date: 2019-12-03

Examining board members

Fatima Aparecida Emm Faleiros Sousa; Jaime Olavo Marquez; Simone Saltareli; Manoel Antonio dos Santos

• Advisor: Fatima Aparecida Emm Faleiros Sousa

Abstract

The literature points to the growing interest about the interference of pain on quality of life. Concerning the concept of total pain and the psychophysical framework, this study aimed to elaborate the Multidimensional Pain Interference Assessment Scale on Quality of Life (EMAIDOR-QUALIVIDA). The study included 312 individuals with pain, considering the different methods, 42 participants in the focus groups, 210 in the category estimation method and 60 in the magnitude estimation method (numerical and line length), and these were divided into two groups. Patient Management and Health Professionals. Estimation and magnitude data were used for psychophysical validation of the scale by the intermodal pairing method. Regarding the survey of items for the instrument, research was conducted in the national and international literature together with the focus groups. Regarding the focus groups, five focus groups were conducted, mediated by two researchers with the following guiding question: \"How does pain interfere with your life?\" In these groups we obtained data referring to the physical, psychic, family systemic domains, couple interaction, relationships of work, financial, leisure, relationships with the community, spirituality, management, relationship with professionals and the health service. Regarding the application of the EMAIDOR-QUALIVIDA scale by the category estimation method, the five highest-rated items among all groups were: \"I would do anything to get rid of pain\" (8.53 ± 2.48), \"I am aware of the importance of being treated for pain\" (8.83 ± 1.91), \"Despite the pain I feel that life is worth it\" (8.39 ± 2.58), \"Due to my pain I have difficulties in performing physical activities \"(8.29 ± 2.30) and\" Due to the pain I feel tired, discouraged \"(8.21 ± 2.08). The items refer to the dimensions: Psychic / Affective - in the first, second, third and fifth items and Physical-Functional / Affective - in the fourth item. Regarding the Estimation of Magnitude (EM) and Line Length (CL) of the PM group, the five most attributed items referred to the dimensions: Psychic / Affective - in the first item, in the second, third and fifth items and Physical. or functional / Affective - in the fourth item. Regarding the estimation of magnitude and line length of the PS group, the five most attributed items referred to the following dimensions: - in the first, second, third and fifth items and Physical-Functional / Affective - in the first, second and third items and Psychic / Affective - in the fourth and fifth items, it should be emphasized that in these two methods there was only inversion of the second highest order between the fourth and fifth items. Regarding the psychophysical validation of the scale we obtained exponents very close to 1 which represents that any change in the stimulus would produce similar changes in the judgments made through both modalities, validating the scale from the point of view of psychophysics. As a result of the analysis of the set of methods, it was possible to perceive the multidimensionality and complexity of the phenomenon, its various attributes, represented by the scale items and the dimensions, namely, Physical-Functional / Affective, Psychic / Affective, Social / Affective, Family / Affective, Spiritual / Affective and Financial / Affective. (AU)

• FAPESP's process: 16/12539-0 - Development of multidimensional scale evaluation of interference pain in quality of life (EMAIDorQuaVi): a new concept from the perspective of the concept of total pain
• Grantee: Rodrigo Ramon Falconi Gomez
• Support Opportunities: Scholarships in Brazil - Doctorate (Direct)