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Stomas in neonatology: a maternal rescue memory

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Author(s):
Andreia Cascaes Cruz
Total Authors: 1
Document type: Master's Dissertation
Press: São Paulo.
Institution: Universidade de São Paulo (USP). Escola de Enfermagem (EE/SBD)
Defense date:
Examining board members:
Margareth Angelo; Eliana Moreira Pinheiro; Monika Wernet
Advisor: Margareth Angelo
Abstract

The scientific production overview that concerns the family and stomas urges for studies about the subject, especially about the experience in neonatal period that is pervaded with beliefs, feelings and expectations implicated in the birth of a new member of a family and the changes that this event brings along for family life. The present study aimed to comprehend mothers experience about stomized children during neonatal period or the hospitalization period in Neonatal Intensive Care Unit. The methodological approach adopted in this study was Oral History, where interviews were conducted with nine mothers, focusing on the impact of the event on their stories. The rescue of individual memories enabled the elaboration of narratives in an analytical process which consequently resulted in rescuing of collective memory, organized in four themes: DREAMS VERSUS REALITY, LOST PROTECTION, IN FEARS COMPANY and MOTHERHOOD IS NEEDED. The results revealed that unwanted and unexpected events, such as stomas, might generate profound impact in womens and families lives. Such factors turn dreams into a very different reality which are likely to be lived with fear and suffering. Mother lives the experience believing that is her duty care of her child and that motherhood is need, and at the same time perceiving prevented herself from exercising her role. The results allow a reflection about the importance of more effective actions that contribute to the autonomy and relief of suffering of the mother in Neonatal Intensive Care Unit, where nursing care can be guided by the principles of Family Centered Care which emphasize dignity and respect, sharing information, participation and collaboration. (AU)

FAPESP's process: 09/06604-0 - Beliefs and strenghts of families of a stomized newborn
Grantee:Andréia Cascaes Cruz
Support Opportunities: Scholarships in Brazil - Master