Social Suffering and mutual help among people living with HIV/AIDS in a social network on the internet

• Grant number: 18/07846-6
• Support Opportunities: Regular Research Grants
• Start date: October 01, 2018
• End date: September 30, 2020
• Field of knowledge: Health Sciences - Collective Health
• Principal Investigator: Lucas Pereira de Melo
• Grantee: Lucas Pereira de Melo
• Host Institution: Escola de Enfermagem de Ribeirão Preto (EERP). Universidade de São Paulo (USP). Ribeirão Preto , SP, Brazil
• Associated researchers: Edemilson Antunes de Campos

Abstract

The objective of this research project is to comprehend the different ways in which people who live with HIV/AIDS confront experiences of social suffering, specifically the ones produced in the context of mutual help shared within a social network of the internet. This analysis will be supported by theoretical contributions from the anthropology of suffering and the anthropology of emotions, as well as from a dialogue with the field of health, in general, and of mental health, in particular. This virtual ethnography will be conducted within a closed group of people living with HIV/AIDS on the social network Facebook. The fieldwork will be conducted from August 2018 through June 2019. The following research techniques will be employed for data collection: on-line participant observation, individual interviews, and document analysis of the content posted in the group's page. The information collected through these techniques will be registered in field journals, in audio recordings, and in text archives, respectively. The data will be processed using the software NVivo 11 Plus and subsequently analyzed and interpreted. Through the results of this study, we expect to offer a contribution for understanding the forms of social suffering and of agencies for confronting it among people who live with HIV/AIDS. Additionally, we hope to produce symbolic evidence that may promote the formulation of public policies and the humanization of care in health. (AU)

Scientific publications

(References retrieved automatically from Web of Science and SciELO through information on FAPESP grants and their corresponding numbers as mentioned in the publications by the authors)

LUCAS PEREIRA DE MELO; LUMENA CRISTINA DE ASSUNÇÃO CORTEZ; RAUL DE PAIVA SANTOS. É a cronicidade do HIV/aids frágil? Biomedicina, política e sociabilidade em uma rede social on-line. Revista Latino-Americana de Enfermagem, v. 28, 2020-06-08. (18/07846-6)

ÉVERSON DE BRITO DAMASCENO; LUMENA CRISTINA DE ASSUNÇÃO CORTEZ; FÁBBIO DE SOUZA FERREIRA; MERCÊS DE FÁTIMA DOS SANTOS SILVA; LUCAS PEREIRA DE MELO. “Algo tão simples de viver e controlar, mas difícil de compartilhar e defender”: HIV/Aids, segredos e socialidades em uma rede social on-line. Interface (Botucatu), v. 23, 2019-08-05. (18/07846-6)

LUCAS PEREIRA DE MELO. Por uma Antropologia da Saúde politicamente posicionada: entrevista com Chiara Pussetti. Interface (Botucatu), v. 25, 2021-05-17. (18/07846-6)