Caregiver quality of life

• Grant number: 16/03324-0
• Support Opportunities: Scholarships in Brazil - Scientific Initiation
• Start date: September 01, 2016
• End date: August 31, 2017
• Field of knowledge: Health Sciences - Nursing - Medical-Surgical Nursing
• Principal Investigator: Maria Virginia Martins Faria Faddul Alves
• Grantee: Julia Valério Santa Rosa
• Host Institution: Faculdade de Medicina (FMB). Universidade Estadual Paulista (UNESP). Campus de Botucatu. Botucatu , SP, Brazil

Abstract

Children with myelomeningocele have a chronic condition and the course of their lives can be submitted to different surgical procedures. In this way the family unit is weakened in need of restructuring to meet basic human needs and may vary according to the neuromotor impairment . The objective of the study is to verify the quality of life of the caregiver . This is a cross-sectional study, which will be held in the children's clinic of a teaching hospital. Will be included informal caregivers of children in postoperative spinal disrafism correction for myelomeningocele , 6 months to 18 years, who will answer the questionnaire Priorities Caregiver and Health Index of Children with Disabilities. The study will subsidize guidelines protocols with a view to the quality of life of the caregiver and children.