Study of Burden Among Caregivers of Children with Cleft Lip and Palate

Author(s)

Ana Paula Ribeiro Razera ^[1] ; Armando dos Santos Trettene ^[2] ; Maria de Lourdes Merighi Tabaquim ^[3] ; Ana Vera Niquerito ^[4]

Affiliation

^[1] Universidade de São Paulo - Brasil

^[2] Universidade de São Paulo - Brasil

^[3] Universidade de São Paulo - Brasil

^[4] Universidade de São Paulo - Brasil

• Document type: Journal article
• Source: Paidéia; v. 27, n. 68, p. 247-254, 2017-12-00.

Abstract

Abstract: The psychological and physical health of caregivers of children with cleft lip and palate can be strongly influenced by the child’s condition and behavior, and care required by the treatment. This study’s objective was to identify overload levels among these caregivers. A total of 100 caregivers, whose children were in the perioperative period of cheiloplasty and/or palatoplasty, were interviewed using the Scale Burden Interview. The data were analyzed quantitatively. Moderate and moderate severe burden levels were identified in 43% of the sample. The mothers of children aged around 12 months presented significantly higher overload. The results indicate that children in this developmental stage present greater care demand because they seek autonomy in locomotion, explore objects in their surrounding environment, and continually request communicative and affective-social interaction with their reference to greater attachment (the caregiver), which may have contributed to higher burden. (AU)

• FAPESP's process: 12/18085-0 - Design and behavior of caregivers of children with cleft lip and palate on nursing care in the postoperative period of primary surgeries.
• Grantee: Ana Paula Ribeiro Razera
• Support Opportunities: Scholarships in Brazil - Doctorate