| Full text | |
| Author(s): |
Brugnaro, Beatriz Helena
;
Fernandes, Gesica
;
De Campos, Ana Carolina
;
Pavao, Silvia Leticia
;
Pfeifer, Luzia Iara
;
de Camargo, Olaf Kraus
;
Hlyva, Oksana
;
Rocha, Nelci Adriana Cicuto Ferreira
Total Authors: 8
|
| Document type: | Journal article |
| Source: | DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY; v. 66, n. 8, p. 14-pg., 2024-03-25. |
| Abstract | |
Aim: To describe current home participation (frequency, involvement) and caregiver's desire for change in home participation of children and adolescents with Down syndrome, as well as home environmental factors, and to explore the associations of personal and environmental factors with current participation and caregiver's desire for change. Method: Eighty-two caregivers (mean age = 45 years 10 months) of children and adolescents with Down syndrome (mean age = 10 years 7 months) were surveyed about the child's home participation and environmental factors using the Participation and Environment Measure-Children and Youth. Furthermore, children's personal and environmental factors were collected. Results are reported using descriptive analysis and correlations (Spearman's rank correlation coefficients and Mann-Whitney U test) to describe the relationship between current participation and caregiver's desire for change, with personal and environmental factors as ordinal and nominal variables respectively (p < 0.05). Results: Children's participation was highest with regard to personal care management and lowest with regard to school-related activities. Most caregivers desired change in homework and household chores. Greater frequency was associated with male sex, caregiver less rigorous social distancing due to the COVID-19 pandemic, and children receiving therapies. Greater involvement was associated with younger age in children and higher environmental support. Older age in children was associated with caregiver's greater desire for change. Interpretation: Personal and environmental factors correlated with participation in specific ways. Creative strategies to promote participation that consider caregiver's wishes should be undertaken. (AU) | |
| FAPESP's process: | 19/13570-6 - Characterization of the Activity and Participation of children and adolescents with Down Syndrome: influence of biopsychosocial factors |
| Grantee: | Nelci Adriana Cicuto Ferreira Rocha |
| Support Opportunities: | Regular Research Grants |
| FAPESP's process: | 19/13716-0 - Determinants of participation in home, at school and at community settings of children and adolescents with Down Syndrome |
| Grantee: | Beatriz Helena Brugnaro |
| Support Opportunities: | Scholarships in Brazil - Doctorate (Direct) |