Impact of environmental factors on participation at home of children with Down Syndrome

• Grant number: 20/05685-5
• Support Opportunities: Scholarships in Brazil - Scientific Initiation
• Start date: March 01, 2021
• End date: August 31, 2022
• Field of knowledge: Health Sciences - Physiotherapy and Occupational Therapy
• Principal Investigator: Nelci Adriana Cicuto Ferreira Rocha
• Grantee: Gesica Fernandes
• Host Institution: Centro de Ciências Biológicas e da Saúde (CCBS). Universidade Federal de São Carlos (UFSCAR). São Carlos , SP, Brazil

Abstract

Children who have some type of disability, such as Down syndrome (DS),may show less engagement in participating in daily activities, and Contextual Factors (Personal and Environmental) can be facilitators or barriers to functionality of the individual, thus favoring or restricting their participation. However, it is not known which Environmental Factors influence the restriction of participation in children with DS, in an assessment based on the International Classification of Functionality, Disability and Health (CIF). Thus, the present study aims to objective to verify the impact of Environmental Factors on participation in children's homes with DS, checking if there is an influence of these factors with the participation performance. Parents of children with DS aged between 6 and 12 years will participate in this study. The Participation will be assessed using the instrument PEM-CY (Measure of Participation and Environment- Children and Youth). The Environmental Factors will be obtained by the instruments PEM-CY-part environment, Social Support Scale and semi-structured interview about sociodemographic data. Due to the current pandemic situation, collections will occur remotely, with the application of the PEM-CY via telephone and the other instruments by using electronic forms. Descriptive results will be given according to the normality pattern of the raw scores of each variable and by categorizing the data regarding the semi-structured interview. Statistical analysis will be performed using correlation and regression tests, according to the pattern of distribution of normality of the data. For all analyzes, a level of significance of 5% (± = 0.05). As participation provides an opportunity to interact with others people in an environment that encourages social support, security and self-esteem, the findings this research will assist in the promotion of evaluations and therapeutic interventions and involving biopsychosocial aspects advocated by the World Health Organization (WHO) and described in the ICF.

Scientific publications

(References retrieved automatically from Web of Science and SciELO through information on FAPESP grants and their corresponding numbers as mentioned in the publications by the authors)

BRUGNARO, BEATRIZ HELENA; FERNANDES, GESICA; VIEIRA, FABIANA NASCIMENTO; PAVAO, SILVIA LETICIA; ROCHA, NELCI ADRIANA CICUTO FERREIRA. Following 4 months of social distancing during COVID-19 Pandemic in Brazil did not change aspects of functioning in children and adolescents with developmental disabilities: A longitudinal study. JOURNAL OF INTELLECTUAL DISABILITIES, v. N/A, p. 16-pg., 2023-06-16. (20/05685-5, 19/13716-0, 21/15016-6, 19/13570-6)

BRUGNARO, BEATRIZ HELENA; VIEIRA, FABIANA NASCIMENTO; FERNANDES, GESICA; DE CAMARGO, OLAF KRAUS; FUMINCELLI, LAIS; DE CAMPOS, ANA CAROLINA; PAVAO, SILVIA LETICIA; CICUTO FERREIRA ROCHA, NELCI ADRIANA. Exploration of the Feasibility of Remote Assessment of Functioning in Children and Adolescents with Developmental Disabilities: Parents' Perspectives and Related Contextual Factors. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, v. 19, n. 22, p. 14-pg., 2022-11-01. (20/05685-5, 19/13570-6, 19/13716-0, 21/15016-6)