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Participation in the home context of children and adolescents with Down Syndrome

Grant number: 17/26847-0
Support type:Scholarships abroad - Research Internship - Scientific Initiation
Effective date (Start): September 01, 2018
Effective date (End): October 13, 2018
Field of knowledge:Health Sciences - Physiotherapy and Occupational Therapy
Principal researcher:Nelci Adriana Cicuto Ferreira Rocha
Grantee:Beatriz Helena Brugnaro
Supervisor abroad: Peter Rosenbaum
Home Institution: Centro de Ciências Biológicas e da Saúde (CCBS). Universidade Federal de São Carlos (UFSCAR). São Carlos , SP, Brazil
Research place: McMaster University, Canada  
Associated to the scholarship:17/09653-8 - Sensory profile of children and adolescents with Down Syndrome and the relationship with motor performance and participation in the domiciliary context, BP.IC


The biopsychosocial model of health, best exemplified by the framework of the WHO's International Classification of Functioning, Disability and Health (ICF), describes functionality as the relation between the body functions and structure, the capacity of accomplishing activities and social participation. Thus, in order to plan interventions successfully, it is necessary to understand how health conditions and system impairments affect functional capacities and social participation, as well as how to identify their relationships. Therefore, one of the goals of the primary study is to describe home participation in children and adolescents with DS. The specific goals to be accomplished during the exchange period include: participating in group meetings, engaging in knowledge translation activities, to discuss with the CanChild team data previously collected in Brazil, to translate educational material on participation into Portuguese, and to attend a scientific meeting. Twenty children and adolescents with Down syndrome with ages between 7 and 13 years, and 25 matching peers with typical development, were tested using the Children Helping Out: Responsibilities, Expectations and Supports scale (CHORES) scale. The results will be analyzed, and participation profiles will guide the choice of educational material designed at CanChild to be translated into Portuguese. (AU)

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