Validation of the Portuguese Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY) in Brazil

Author(s):Show less -

Moorthy, L. N. ^[1] ; Saad-Magalhaes, C. ^[2] ; Oliveira Sato, J. ^[2] ; Len, C. A. ^[3] ; Brandao Vasco, M. ^[3] ; Appenzeller, S. ^[4] ; Marini, R. ^[5] ; Feitosa de Oliveira, S. K. ^[6] ; Rodrigues, M. ^[6] ; Sztajnbok, F. ^[7] ; Gasparello de Almeida, R. ^[7] ; Almeida de Jesus, A. ^[8] ; Campos, L. M. ^[8] ; Silva, C. A. ^[8] ; Peterson, M. G. E. ^[9] ; Hassett, A. L. ^[10] ; Weiss, E. ^[1] ; Verma, S. ^[1] ; Dahodwala, M. Q. ^[1] ; Lehman, T. J. A. ^[9]

Affiliation

^[1] UMDNJ, RWJ Med Sch, RWJUH BMSCH, Dept Pediat, New Brunswick, NJ 08901 - USA

^[2] Univ Estadual Paulista UNESP, Fac Med Botucatu, Dept Pediat, Sao Paulo - Brazil

^[3] Univ Fed Sao Paulo, Escola Paulista Med, Dept Pediat, Sao Paulo - Brazil

^[4] Univ Estadual Campinas, Fac Med Sci, Dept Med, Rheumatol Unit, Campinas - Brazil

^[5] Univ Estadual Campinas, Fac Med Sci, Dept Pediat, Campinas - Brazil

^[6] Univ Fed Rio de Janeiro, Inst Puericultura & Pediat Martagao Gesteira, Dept Pediat, BR-21941 Rio De Janeiro - Brazil

^[7] Univ Estado Rio de Janeiro, Adolescent Hlth Care Unit, Div Pediat Rheumatol, Rio De Janeiro - Brazil

^[8] Univ Sao Paulo, Fac Med, Dept Pediat, Pediat Rheumatol Unit, Childrens Inst, BR-05508 Sao Paulo - Brazil

^[9] Hosp Special Surg, New York, NY 10021 - USA

^[10] Univ Michigan, Dept Anesthesiol, Ann Arbor, MI 48109 - USA

• Document type: Journal article
• Source: Lupus; v. 22, n. 2, p. 190-197, FEB 2013.
• Web of Science Citations: 3

Abstract

Background and Objective: Simple Measure of the Impact of Lupus Erythematosus in Youngsters (SMILEY) is a health-related quality of life (HRQOL) assessment tool for pediatric systemic lupus erythematosus (SLE), which has been translated into Portuguese for Brazil. We are reporting preliminary data on cross-cultural validation and reliability of SMILEY in Portuguese (Brazil). Methods: In this multi-center cross-sectional study, Brazilian children and adolescents 5-18 years of age with SLE and parents participated. Children and parents completed child and parent reports of Portuguese SMILEY and Portuguese Pediatric Quality of Life Inventory (PedsQL (TM)) Generic and Rheumatology modules. Parents also completed the Childhood Health Assessment Questionnaire (CHAQ). Physicians completed the SLE disease activity index (SLEDAI), Physician's Global Assessment of disease activity (PGA) and Systemic Lupus Erythematosus International Collaborating Clinics ACR Damage Index (SDI). Results: 99 subjects (84 girls) were enrolled; 93 children and 97 parents filled out the SMILEY scale. Subjects found SMILEY relevant and easy to understand and completed SMILEY in 5-15 minutes. Brazilian SMILEY was found to have good psychometric properties (validity and reliability), and the child-parent agreement was moderate. Conclusion: SMILEY may eventually be used routinely as a research/clinical tool in Brazil. It may be also adapted for other Portuguese-speaking nations offering critical information regarding the effect of SLE on HRQOL for children with SLE. Lupus (2013) 22, 190-197. (AU)

• FAPESP's process: 08/58238-4 - Autoimmunity in children: investigation of the molecular and cellular bases of early onset of autoimmunity
• Grantee: Magda Maria Sales Carneiro-Sampaio
• Support Opportunities: Research Projects - Thematic Grants
• FAPESP's process: 11/12471-2 - Ovarian reserve, antibody anti-corpus luteum and lower genital tract infection in adult women with systemic lupus erythematosus, Behçet's syndrome and Takayasu's arteritis
• Grantee: Clovis Artur Almeida da Silva
• Support Opportunities: Regular Research Grants
• FAPESP's process: 08/02917-0 - Blood and cerebrospinal fluid biomarkers associated with structural and functional central nervous system abnormalities in systemic lupus erythematosus
• Grantee: Simone Appenzeller
• Support Opportunities: Research Grants - Young Investigators Grants