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(Reference retrieved automatically from SciELO through information on FAPESP grant and its corresponding number as mentioned in the publication by the authors.)

Cultural adaptation and initial psychometric properties of the DISABKIDS ® – Cystic Fibrosis Module – Brazilian version

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Author(s):
Danielle Maria de Souza Serio dos Santos [1] ; Keila Cristiane Deon [2] ; Claudia Fegadolli [3] ; Roberta Alvarenga Reis [4] ; Lidia Alice Gomes Monteiro Marin Torres [5] ; Monika Bullinger [6] ; Claudia Benedita dos Santos [7]
Total Authors: 7
Affiliation:
[1] Universidade de Sao Paulo. Escola de Enfermagem de Ribeirao Preto - Brasil
[2] Universidade de Sao Paulo. Escola de Enfermagem de Ribeirao Preto - Brasil
[3] Universidade Federal de Sao Paulo - Brasil
[4] Universidade Federal do Rio Grande do Sul. Departamento de Odontologia Preventiva e Social - Brasil
[5] Universidade de Sao Paulo - Brasil
[6] Universitatsklinikim Hambug-Eppendorf - Alemanha
[7] Universidade de Sao Paulo. Escola de Enfermagem de Ribeirao Preto - Brasil
Total Affiliations: 7
Document type: Journal article
Source: Revista da Escola de Enfermagem da USP; v. 47, n. 6, p. 1311-1317, 2013-12-01.
Abstract

This study aimed to perform the cultural adaptation and describe the initial psychometric properties of the DISABKIDS®−Cystic Fibrosis Module instrument to measure health-related quality of life for children and adolescents and their parents/caregivers. Methodological study of sequential development, including 126 participants in four Brazilian states. Involved translation and back translation of items, semantic and conceptual equivalence, face validity and description of the initial psychometric properties related to the construct and reliability. For semantic equivalence of the adapted version, there were adjustments in the phrasing of an item. The instrument showed satisfactory internal consistency with Cronbach’s alpha values between 0.70 and 0.85, convergent validity with correlation values above 0.40 in 85% of the items and divergent validity with scale fit higher than 75%. The Brazilian version of DISABKIDS® – CFM will certainly constitute a valid and reliable instrument for measuring the quality of life of Brazilian children and adolescents with cystic fibrosis. (AU)