Characterization of the Activity and Participation of children and adolescents with Down Syndrome: influence of biopsychosocial factors

• Grant number: 19/13570-6
• Support Opportunities: Regular Research Grants
• Start date: May 01, 2020
• End date: October 31, 2022
• Field of knowledge: Health Sciences - Physiotherapy and Occupational Therapy
• Principal Investigator: Nelci Adriana Cicuto Ferreira Rocha
• Grantee: Nelci Adriana Cicuto Ferreira Rocha
• Host Institution: Centro de Ciências Biológicas e da Saúde (CCBS). Universidade Federal de São Carlos (UFSCAR). São Carlos , SP, Brazil
• Associated researchers: Ana Carolina de Campos ; Laís Fumincelli ; Silvia Leticia Pavão Rago
• Associated scholarship(s): 21/01620-9 - Characterization of the activity and participation of children and adolescents with Down Syndrome: influence of biopsychosocial factors, BP.TT; 20/12117-3 - Characterization of the activity and participation of children and adolescents with Down Syndrome: influence of biopsychosocial factors, BP.TT

Abstract

According to the biopsychosocial model, functionality is the result of the dynamic relationship between the conditions of body structure and function, the ability to perform activities and performance in social participation, as well as influences of contextual factors (personal and environmental). Thus, for successful intervention planning, it is necessary to understand how health / disease conditions and system deficiencies affect functional capacities and restrict social participation. In addition, identify their relationships with contextual factors, which may be facilitators or limiters of functionality. Thus, the present study aims to characterize the ability to perform activities and performance in the participation of children and adolescents with Down syndrome (SD) and to compare with typical group, as well as to verify the influence of biopsychosocial factors. Participants of this study will be children and adolescents with SD and with typical development, aged between 6 and 17 years. The ability to perform activity will be evaluated through the functional mobility test (TUG) and the accelerometer. Participation will be assessed using the following instruments: PEM-CY (participation), CHORES, PEDI (part I and II), LIFE-H 3.1 (Recreation domain). Personal factors will be age, gender, schooling and personality characteristics obtained by the environmental factors will be evaluated using the AMC-19, PEM-CY (environment: aids and barriers), PEDI (part III), Social Support Scale, semi-structured data and body and body functions will be evaluated using the G-Walk inertial sensor during the TUG test, obtaining spatiotemporal and angular gait variables. Descriptors will be given according to the standard of normality of the gross scores of each variable and by means of categorization of the data referring to the semi-structured interview. Comparisons between SD and typical groups, as well as correlation and regression for both groups, according to the normal distribution pattern of the data. For all analyzes, a significance level of 5% (± = 0.05) will be adopted. Identifying these aspects, it will be possible to elaborate intervention strategies for children and adolescents with SD based on the biopsychosocial model advocated by the International Classification of Functioning, Disability and Health. (AU)

Scientific publications

(References retrieved automatically from Web of Science and SciELO through information on FAPESP grants and their corresponding numbers as mentioned in the publications by the authors)

BRUGNARO, BEATRIZ HELENA; DE CAMARGO, OLAF KRAUS; CORSI, CAROLINA; DE CAMPOS, ANA CAROLINA; FERNANDES, GESICA; PAVAO, SILVIA LETICIA; CICUTO FERREIRA ROCHA, NELCI ADRIANA. Functioning of children and adolescents with Down syndrome and the association with environmental barriers and facilitators during the COVID-19 pandemic. JOURNAL OF INTELLECTUAL DISABILITIES, SEP 2021. (19/13716-0, 19/13570-6)

BRUGNARO, BEATRIZ HELENA; FERNANDES, GESICA; VIEIRA, FABIANA NASCIMENTO; PAVAO, SILVIA LETICIA; ROCHA, NELCI ADRIANA CICUTO FERREIRA. Following 4 months of social distancing during COVID-19 Pandemic in Brazil did not change aspects of functioning in children and adolescents with developmental disabilities: A longitudinal study. JOURNAL OF INTELLECTUAL DISABILITIES, v. N/A, p. 16-pg., 2023-06-16. (20/05685-5, 19/13716-0, 21/15016-6, 19/13570-6)

BRUGNARO, BEATRIZ HELENA; VIEIRA, FABIANA NASCIMENTO; FERNANDES, GESICA; DE CAMARGO, OLAF KRAUS; FUMINCELLI, LAIS; DE CAMPOS, ANA CAROLINA; PAVAO, SILVIA LETICIA; CICUTO FERREIRA ROCHA, NELCI ADRIANA. Exploration of the Feasibility of Remote Assessment of Functioning in Children and Adolescents with Developmental Disabilities: Parents' Perspectives and Related Contextual Factors. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, v. 19, n. 22, p. 14-pg., 2022-11-01. (20/05685-5, 19/13570-6, 19/13716-0, 21/15016-6)