Determinants of participation in home, at school and at community settings of children and adolescents with Down Syndrome

• Grant number: 19/13716-0
• Support Opportunities: Scholarships in Brazil - Doctorate (Direct)
• Start date: March 01, 2020
• End date: October 15, 2023
• Field of knowledge: Health Sciences - Physiotherapy and Occupational Therapy
• Principal Investigator: Nelci Adriana Cicuto Ferreira Rocha
• Grantee: Beatriz Helena Brugnaro
• Host Institution: Centro de Ciências Biológicas e da Saúde (CCBS). Universidade Federal de São Carlos (UFSCAR). São Carlos , SP, Brazil
• Associated scholarship(s): 21/15016-6 - Community support in Brazil during the Covid-19 pandemic & elaboration, translation and cross-cultural adaptation of the version 2.0 of the measure of processes of care (MPOC) for Brazilian Portuguese, BE.EP.DD

Abstract

According to the International Classification of Functioning, Disability and Health (ICF) biopsychosocial model, functionality is the result of the dynamic relationship between the conditions of integrity of body structures and functions, the ability to perform activities and performance in participation, as well as by influences of contextual factors. Thus, for planning general interventions (clinical, environmental, social) it is important to understand how contextual factors and health/disease conditions and system deficiencies can impact functional capacities and restrict or facilitate social participation. Thus, the aim of the present study is to map the biopsychosocial determinants that may influence the participation at home, school and community of children and adolescents with Down Syndrome (DS). Participate in this study children and adolescents with DS, aged 6 to 17 years, and their guardians. Participation will be assessed by the Participation and Environment Measure - Children and Youth (PEM-CY) instrument (part: 'participation'). The ability to perform activities by functional mobility testing (TUG) and use of accelerometer to identify the level of physical activity. Personal factors will be gender, age and personality characteristics obtained through the Skills and Difficulties Questionnaire. Environmental factors will be assessed by the PEM-CY (part: 'environment'), Social Support Scale, About My Child-19 and semi-structured interview protocol on sociodemographic data. Body structures and functions will be evaluated using spatiotemporal and angular variables during the TUG test. Descriptive results will be given according to the normality pattern of the obtained scores. Correlation tests and multiple linear regression will be performed, with adopted significance level of 5% (± = 0.05). By identifying these aspects, it will be possible to elaborate intervention strategies that favor the social participation of these individuals. (AU)

Scientific publications

(5)

(References retrieved automatically from Web of Science and SciELO through information on FAPESP grants and their corresponding numbers as mentioned in the publications by the authors)

BRUGNARO, BEATRIZ HELENA; DE CAMARGO, OLAF KRAUS; CORSI, CAROLINA; DE CAMPOS, ANA CAROLINA; FERNANDES, GESICA; PAVAO, SILVIA LETICIA; CICUTO FERREIRA ROCHA, NELCI ADRIANA. Functioning of children and adolescents with Down syndrome and the association with environmental barriers and facilitators during the COVID-19 pandemic. JOURNAL OF INTELLECTUAL DISABILITIES, SEP 2021. (19/13716-0, 19/13570-6)

BRUGNARO, BEATRIZ HELENA; OLIVEIRA, MARIA FERNANDA PAULETTI; DE CAMPOS, ANA CAROLINA; PAVAO, SILVIA LETICIA; ROCHA, NELCI ADRIANA CICUTO FERREIRA. Postural control in Down syndrome and relationships with the dimensions of the International Classification of Functioning, Disability and Health - a systematic review. DISABILITY AND REHABILITATION, v. 44, n. 11, p. 16-pg., 2020-10-12. (19/13716-0, 17/11259-6)

BRUGNARO, BEATRIZ HELENA; FERNANDES, GESICA; VIEIRA, FABIANA NASCIMENTO; PAVAO, SILVIA LETICIA; ROCHA, NELCI ADRIANA CICUTO FERREIRA. Following 4 months of social distancing during COVID-19 Pandemic in Brazil did not change aspects of functioning in children and adolescents with developmental disabilities: A longitudinal study. JOURNAL OF INTELLECTUAL DISABILITIES, v. N/A, p. 16-pg., 2023-06-16. (20/05685-5, 19/13716-0, 21/15016-6, 19/13570-6)

BRUGNARO, BEATRIZ HELENA; VIEIRA, FABIANA NASCIMENTO; FERNANDES, GESICA; DE CAMARGO, OLAF KRAUS; FUMINCELLI, LAIS; DE CAMPOS, ANA CAROLINA; PAVAO, SILVIA LETICIA; CICUTO FERREIRA ROCHA, NELCI ADRIANA. Exploration of the Feasibility of Remote Assessment of Functioning in Children and Adolescents with Developmental Disabilities: Parents' Perspectives and Related Contextual Factors. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, v. 19, n. 22, p. 14-pg., 2022-11-01. (20/05685-5, 19/13570-6, 19/13716-0, 21/15016-6)

GAMBARO LIMA, CAMILA RESENDE; VERDERIO, BRUNA NAYARA; FERRAZ DE ABREU, RAISSA WANDERLEY; BRUGNARO, BEATRIZ HELENA; DOS SANTOS, ADRIANA NEVES; DOS SANTOS, MARIANA MARTINS; CICUTO FERREIRA ROCHA, NELCI ADRIANA. Telemonitoring of motor skills using the Alberta Infant Motor Scale for at-risk infants in the first year of life. JOURNAL OF TELEMEDICINE AND TELECARE, v. N/A, p. 10-pg., 2022-06-06. (19/13716-0, 20/02818-4)